On Tuesday I got some bad news from my friend and labmate, Dave. His mom passed away. We all knew that she had been having some troubles, recently, but I at least didn't know that it was life-threatening, so it kind of came as a shock to me at least. It turns out that it was a recurrence of breast cancer. Most of "the lab" -- Bobby, Bender, Cristian, Aaron, and myself (and obviously Dave) -- attended the funeral, in part to be there for Dave and also because we had actually met his mom at his thesis proposal. I didn't really get to talk to her at that time, but she seemed like a wonderful woman, and that first impression was reinforced at the funeral service. I haven't lost someone as close to me as she is to Dave, so I really can't understand what he must be going through right now... all I can do is be there for him if he needs me.
Unsurprisingly, this is the first funeral I've been to post-Carmichael. Part of me wants to say that it affected me differently than previous funerals, but I don't think it would be entirely honest. I remember going to the funeral of Kirstin, a girl I went to elementary school with who died in a car accident, and thinking at the time that it could have just as easily been me in that car. The same thing happened with Jordan's funeral after high school. As much as I go to these events to mourn the passing of the people I know, I feel like I also look at them as a reminder that one day I too will die, and I'll have one of these services of my own. Maybe I've just been watching too much Dead Like Me, but I really kind of wish that my death is something spectacular. It would be even cooler if I died doing something heroic, but modern life does not leave much room for heroism. No, in all probability, I will die of something mundane, but with any luck it won't be because of Carmichael, and it won't be any time soon.
The world marches on past Dave's loss... less than an hour later I found myself at the doctor's office. Today's appointment was a little shorter than the previous ones had been; I probably could have gone in to the lab for a few hours afterward, but between the funeral and the rain I just didn't feel like working today. My next two appointments (in two and four weeks) will just be a matter of getting blood drawn, and then they'll call me if there's anything unusual. Then in six weeks I'll have a full appointment again, and they'll do a FISH test to see details about Carmichael. Until then, as I have been anticipating, my CBC is looking very good across the board, so in some sense I'm doing better than I've done in a really long time. Hurray.
PP (post... post): For the record, when I die I want to be cremated, and have my ashes spread somewhere cool, like in an active volcano, space (including, but not limited to the moon), or Antarctica. If those are all too difficult, then a cave would suffice, but it should be pretty deep at least.
Showing posts with label appointment. Show all posts
Showing posts with label appointment. Show all posts
Thursday, October 15, 2009
Thursday, October 01, 2009
Doctor's Appointment
Today was Thursday, and that means that it was time for an appointment. The appointments have been a little frustrating for me. Back in February my car died, so ever since then I've just used Zipcar to get around. This has worked very well for me; I can get to most places by foot, bus, or metro. However, I live in College Park, and the Greenebaum Cancer Center is up in Baltimore, about a 30-45 minute drive away.
It wouldn't be so bad to do with Zipcar, except Zipcar is pay-by-the-hour, and I spend a lot of hours at the GCC. My typical appointment goes like this. Someone in my family picks me up around 10 and I get to GCC about 15-30 minutes before my appointment time. I sign in, and then almost immediately get my vitals checked. Then I have to wait until my appointment time, at which time they draw some blood and tell me to wait in the other waiting room. And I wait, and wait, and wait, while they do a CBC (Complete Blood Count) test on my blood. Then I see my doctors, Dr. Singh and Dr. Rapoport, and they tell me that my blood counts are low but that that is to be expected. For a while, I would then have to go fill a prescription for Gleevec, but now that I've been approved for the patient assistance program the Gleevec is shipped directly to my house. Back when I had to wait for the prescription, I would be at GCC until 4:30, but now I'm "only" there until 3:00 or so.
The CBC is pretty interesting. I started out at 480 thousand white blood cells per millimeter cubed (which I will from now on denote as 480 WBC). They put me on Gleevec and Hydroxyurea (which is what most people think of when they think of chemotherapy), and that entire week at the hospital I dropped by about 50 WBC each day. I was at 70 WBC when they discharged me, and the next week I was in the normal range. Now I'm actually a little low, on white blood cells, red blood cells, platelets, you name it. Today they gave me a procrit shot to try to convince my body to make more red blood cells. Since my WBC is so low, they also gave me the flu shot and advised me to get the H1N1 shot when it becomes available.
Also today, we had a bit of a snafu. My brother came to the appointment with me, intending to get some blood drawn to test if he's a bone marrow match in case we decide to do a bone marrow transplant in the future. This of course confused the nurses --- they took his vitals, drew my blood --- in short they mixed up a lot of information and failed to take my vitals or draw his blood. They eventually corrected the mistake after Dr. Rapoport came into the room and jokingly mentioned that I had put on a little weight; at this point I told him that they never took my vitals, and then questioned how he believed the numbers he had in front of him. After all, I weigh about 150 pounds and my brother weighs 180, and I'd think it would be pretty unhealthy to put on 30 pounds in a week. In any case, we eventually got the matter sorted out. The thing I found so weird about it is that we knew there was some confusion, so we each checked the names on the sheets and they had Billy's name for the vitals and my name for the blood. Weird, huh?
Despite that eating up most of my day, I did manage to have a lot of good times today. In particular, I was one of the lucky "few" to get a Google Wave invite, and playing with that has been really fun. Though, Google Wave is all about collaboration, and my friend invites haven't taken effect yet, so there's not a lot to do with it yet. I did create a list of video games that I plan to purchase. I normally keep such a list in Gmail, and reply to the mail to update the list, so Google Wave really is exactly what I want for that. I will likely also move my "command line" folder to Google Wave, and probably share that with my friend Katrina as well. That folder is what I use to store useful command line calls that I would otherwise forget, and again, since I edit them and append to them, Google Wave seems like the perfect place.
Then, much later, I also managed to snag a PSP Go. I'm especially happy about this because NISA is having a 50% off deal on six of their games, five of which I plan to buy, this week only in honor of the Go's debut. Since I didn't own a PSP previously, the PSP Go is a great buy for me, especially now that I'm spending entire days at a time on the go waiting in GCC for my appointment with the doctors.
It wouldn't be so bad to do with Zipcar, except Zipcar is pay-by-the-hour, and I spend a lot of hours at the GCC. My typical appointment goes like this. Someone in my family picks me up around 10 and I get to GCC about 15-30 minutes before my appointment time. I sign in, and then almost immediately get my vitals checked. Then I have to wait until my appointment time, at which time they draw some blood and tell me to wait in the other waiting room. And I wait, and wait, and wait, while they do a CBC (Complete Blood Count) test on my blood. Then I see my doctors, Dr. Singh and Dr. Rapoport, and they tell me that my blood counts are low but that that is to be expected. For a while, I would then have to go fill a prescription for Gleevec, but now that I've been approved for the patient assistance program the Gleevec is shipped directly to my house. Back when I had to wait for the prescription, I would be at GCC until 4:30, but now I'm "only" there until 3:00 or so.
The CBC is pretty interesting. I started out at 480 thousand white blood cells per millimeter cubed (which I will from now on denote as 480 WBC). They put me on Gleevec and Hydroxyurea (which is what most people think of when they think of chemotherapy), and that entire week at the hospital I dropped by about 50 WBC each day. I was at 70 WBC when they discharged me, and the next week I was in the normal range. Now I'm actually a little low, on white blood cells, red blood cells, platelets, you name it. Today they gave me a procrit shot to try to convince my body to make more red blood cells. Since my WBC is so low, they also gave me the flu shot and advised me to get the H1N1 shot when it becomes available.
Also today, we had a bit of a snafu. My brother came to the appointment with me, intending to get some blood drawn to test if he's a bone marrow match in case we decide to do a bone marrow transplant in the future. This of course confused the nurses --- they took his vitals, drew my blood --- in short they mixed up a lot of information and failed to take my vitals or draw his blood. They eventually corrected the mistake after Dr. Rapoport came into the room and jokingly mentioned that I had put on a little weight; at this point I told him that they never took my vitals, and then questioned how he believed the numbers he had in front of him. After all, I weigh about 150 pounds and my brother weighs 180, and I'd think it would be pretty unhealthy to put on 30 pounds in a week. In any case, we eventually got the matter sorted out. The thing I found so weird about it is that we knew there was some confusion, so we each checked the names on the sheets and they had Billy's name for the vitals and my name for the blood. Weird, huh?
Despite that eating up most of my day, I did manage to have a lot of good times today. In particular, I was one of the lucky "few" to get a Google Wave invite, and playing with that has been really fun. Though, Google Wave is all about collaboration, and my friend invites haven't taken effect yet, so there's not a lot to do with it yet. I did create a list of video games that I plan to purchase. I normally keep such a list in Gmail, and reply to the mail to update the list, so Google Wave really is exactly what I want for that. I will likely also move my "command line" folder to Google Wave, and probably share that with my friend Katrina as well. That folder is what I use to store useful command line calls that I would otherwise forget, and again, since I edit them and append to them, Google Wave seems like the perfect place.
Then, much later, I also managed to snag a PSP Go. I'm especially happy about this because NISA is having a 50% off deal on six of their games, five of which I plan to buy, this week only in honor of the Go's debut. Since I didn't own a PSP previously, the PSP Go is a great buy for me, especially now that I'm spending entire days at a time on the go waiting in GCC for my appointment with the doctors.
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