Just a quick update on some stuff. I'm currently feeling a bit crappy, due to a combination of retaining water, muscle (especially back) aches, and an odd bruise that I need to ask the doctor about. I think I might need to get a new chair for work that will help my back feel better.
Today, Kareem Abdul-Jabbar came out as a fellow CaMeL... though it sounds like he caught things really early and was spared the distress of growing a hump. Needless to say, I've watched the Airplane scene with him in it a few times today. This also explains why he was playing for the Leukemia and Lymphoma Society when he was on Celebrity Jeopardy recently.
Also, I got a phone call from my brother, Billy. He got the results from his bone marrow test, and he is apparently at least a preliminary match. So that's good, at least. Of course, a bone marrow transplant is only a last resort if Gleevec, Sprycel, and Tasignia were all to stop working for me. With any luck, that will never happen.
Showing posts with label Billy. Show all posts
Showing posts with label Billy. Show all posts
Tuesday, November 10, 2009
Thursday, October 01, 2009
Doctor's Appointment
Today was Thursday, and that means that it was time for an appointment. The appointments have been a little frustrating for me. Back in February my car died, so ever since then I've just used Zipcar to get around. This has worked very well for me; I can get to most places by foot, bus, or metro. However, I live in College Park, and the Greenebaum Cancer Center is up in Baltimore, about a 30-45 minute drive away.
It wouldn't be so bad to do with Zipcar, except Zipcar is pay-by-the-hour, and I spend a lot of hours at the GCC. My typical appointment goes like this. Someone in my family picks me up around 10 and I get to GCC about 15-30 minutes before my appointment time. I sign in, and then almost immediately get my vitals checked. Then I have to wait until my appointment time, at which time they draw some blood and tell me to wait in the other waiting room. And I wait, and wait, and wait, while they do a CBC (Complete Blood Count) test on my blood. Then I see my doctors, Dr. Singh and Dr. Rapoport, and they tell me that my blood counts are low but that that is to be expected. For a while, I would then have to go fill a prescription for Gleevec, but now that I've been approved for the patient assistance program the Gleevec is shipped directly to my house. Back when I had to wait for the prescription, I would be at GCC until 4:30, but now I'm "only" there until 3:00 or so.
The CBC is pretty interesting. I started out at 480 thousand white blood cells per millimeter cubed (which I will from now on denote as 480 WBC). They put me on Gleevec and Hydroxyurea (which is what most people think of when they think of chemotherapy), and that entire week at the hospital I dropped by about 50 WBC each day. I was at 70 WBC when they discharged me, and the next week I was in the normal range. Now I'm actually a little low, on white blood cells, red blood cells, platelets, you name it. Today they gave me a procrit shot to try to convince my body to make more red blood cells. Since my WBC is so low, they also gave me the flu shot and advised me to get the H1N1 shot when it becomes available.
Also today, we had a bit of a snafu. My brother came to the appointment with me, intending to get some blood drawn to test if he's a bone marrow match in case we decide to do a bone marrow transplant in the future. This of course confused the nurses --- they took his vitals, drew my blood --- in short they mixed up a lot of information and failed to take my vitals or draw his blood. They eventually corrected the mistake after Dr. Rapoport came into the room and jokingly mentioned that I had put on a little weight; at this point I told him that they never took my vitals, and then questioned how he believed the numbers he had in front of him. After all, I weigh about 150 pounds and my brother weighs 180, and I'd think it would be pretty unhealthy to put on 30 pounds in a week. In any case, we eventually got the matter sorted out. The thing I found so weird about it is that we knew there was some confusion, so we each checked the names on the sheets and they had Billy's name for the vitals and my name for the blood. Weird, huh?
Despite that eating up most of my day, I did manage to have a lot of good times today. In particular, I was one of the lucky "few" to get a Google Wave invite, and playing with that has been really fun. Though, Google Wave is all about collaboration, and my friend invites haven't taken effect yet, so there's not a lot to do with it yet. I did create a list of video games that I plan to purchase. I normally keep such a list in Gmail, and reply to the mail to update the list, so Google Wave really is exactly what I want for that. I will likely also move my "command line" folder to Google Wave, and probably share that with my friend Katrina as well. That folder is what I use to store useful command line calls that I would otherwise forget, and again, since I edit them and append to them, Google Wave seems like the perfect place.
Then, much later, I also managed to snag a PSP Go. I'm especially happy about this because NISA is having a 50% off deal on six of their games, five of which I plan to buy, this week only in honor of the Go's debut. Since I didn't own a PSP previously, the PSP Go is a great buy for me, especially now that I'm spending entire days at a time on the go waiting in GCC for my appointment with the doctors.
It wouldn't be so bad to do with Zipcar, except Zipcar is pay-by-the-hour, and I spend a lot of hours at the GCC. My typical appointment goes like this. Someone in my family picks me up around 10 and I get to GCC about 15-30 minutes before my appointment time. I sign in, and then almost immediately get my vitals checked. Then I have to wait until my appointment time, at which time they draw some blood and tell me to wait in the other waiting room. And I wait, and wait, and wait, while they do a CBC (Complete Blood Count) test on my blood. Then I see my doctors, Dr. Singh and Dr. Rapoport, and they tell me that my blood counts are low but that that is to be expected. For a while, I would then have to go fill a prescription for Gleevec, but now that I've been approved for the patient assistance program the Gleevec is shipped directly to my house. Back when I had to wait for the prescription, I would be at GCC until 4:30, but now I'm "only" there until 3:00 or so.
The CBC is pretty interesting. I started out at 480 thousand white blood cells per millimeter cubed (which I will from now on denote as 480 WBC). They put me on Gleevec and Hydroxyurea (which is what most people think of when they think of chemotherapy), and that entire week at the hospital I dropped by about 50 WBC each day. I was at 70 WBC when they discharged me, and the next week I was in the normal range. Now I'm actually a little low, on white blood cells, red blood cells, platelets, you name it. Today they gave me a procrit shot to try to convince my body to make more red blood cells. Since my WBC is so low, they also gave me the flu shot and advised me to get the H1N1 shot when it becomes available.
Also today, we had a bit of a snafu. My brother came to the appointment with me, intending to get some blood drawn to test if he's a bone marrow match in case we decide to do a bone marrow transplant in the future. This of course confused the nurses --- they took his vitals, drew my blood --- in short they mixed up a lot of information and failed to take my vitals or draw his blood. They eventually corrected the mistake after Dr. Rapoport came into the room and jokingly mentioned that I had put on a little weight; at this point I told him that they never took my vitals, and then questioned how he believed the numbers he had in front of him. After all, I weigh about 150 pounds and my brother weighs 180, and I'd think it would be pretty unhealthy to put on 30 pounds in a week. In any case, we eventually got the matter sorted out. The thing I found so weird about it is that we knew there was some confusion, so we each checked the names on the sheets and they had Billy's name for the vitals and my name for the blood. Weird, huh?
Despite that eating up most of my day, I did manage to have a lot of good times today. In particular, I was one of the lucky "few" to get a Google Wave invite, and playing with that has been really fun. Though, Google Wave is all about collaboration, and my friend invites haven't taken effect yet, so there's not a lot to do with it yet. I did create a list of video games that I plan to purchase. I normally keep such a list in Gmail, and reply to the mail to update the list, so Google Wave really is exactly what I want for that. I will likely also move my "command line" folder to Google Wave, and probably share that with my friend Katrina as well. That folder is what I use to store useful command line calls that I would otherwise forget, and again, since I edit them and append to them, Google Wave seems like the perfect place.
Then, much later, I also managed to snag a PSP Go. I'm especially happy about this because NISA is having a 50% off deal on six of their games, five of which I plan to buy, this week only in honor of the Go's debut. Since I didn't own a PSP previously, the PSP Go is a great buy for me, especially now that I'm spending entire days at a time on the go waiting in GCC for my appointment with the doctors.
Tuesday, September 29, 2009
Prayer
I'm usually pretty lax about who I allow to be my friend on Facebook, and usually I'll just hide someone if their posts annoy me. Today I learned that it is possible to push me far enough to remove a "friend".
My sister-in-law, Anna, just got out of bible study. You know how I can tell? I just got a flood of messages on Facebook from people I barely know. Ordinarily I'm pretty good at putting up with religious folk; I know that religion is important to the rest of my family, so I try not to complain too much. One person in particular, who shall remain nameless, I've known for several years, from back when I tried to go to my brothers' church to try to understand their perspective better. Tonight she sent me a message on Facebook about something called "Gerson Therapy", an alternative to modern medicine in the fight against cancer. That pushed me over the edge, and I deleted all of these people who only I barely know and who obviously don't know me at all.
It's one thing to believe in God. I understand that. The existence of God can't be proven or disproven, and I can see how the thought of a better life after this one would be comforting to many people. On the other hand, I consider logic to be irrefutable, and I think the only way that you can truly believe in anything resembling the Christian God is to just totally throw all notion of logic out the window; you must be willing to accept contradictions if you believe in such a God. That is the root of the problem, and that is what really bothers me. When you reject logic, you're free to reject sound scientific reason, such as the theory of evolution or in this unnamed person's case, modern medicine.
I know that right about now, I am incredibly thankful for modern medicine, and am ecstatic that people devote their lives to developing new and better drugs. If I had met Carmichael ten years ago, I would probably be dead by now, because Gleevec is such a new discovery. When you think of things that way, the speed with which scientific discoveries are made is literally a life and death issue for some people. This person's rejection of science is the ultimate insult to me.
That being said, I can tolerate most religious people, but they do tend to annoy me. I can't tell you how many people told me that they were praying for me while I was in the hospital, but I can assure you that I found the number to be far too high. Prayer is absolutely meaningless to me, and these people know that I'm an atheist, so why do they say such things? I know it makes them feel better, but shouldn't I be the one that they comfort? Oh well. I guess I can handle the aggravation if it helps them feel better.
The biggest issue here was that I knew my family would want me to reconsider my beliefs in my new situation. Oddly enough, I expected it more from my brothers and sister-in-law, but they haven't said anything. It was my Mom and Dad who each tried to persuade me, independently. My Mom tried to apply Pascal's Wager; believing in God had to be better than not believing in God. After trying very hard to convince her of the flaws in that argument --- 1) that you could apply the same argument for other gods, 2) that ascribing infinite value to an afterlife and finite value to our earthly existence is an incorrect valuation for many people, and 3) that believing in God in such a selfish way is unlikely to work even in the event that everything people believe of heaven is real --- she was eventually satisfied when I finally convinced her that the notion of death being final and absolute was actually comforting to me because it makes sense. Apparently, she was more concerned that I was depressed than she was for my soul.
I think it's difficult for religious people to grasp that atheists aren't really afraid of death, and I'm not sure why. It's not like we believe that there's the possibility for an eternity of torture after we die. Death is inevitable; it's really just a matter of when it comes for you and what legacy you can leave behind.
My sister-in-law, Anna, just got out of bible study. You know how I can tell? I just got a flood of messages on Facebook from people I barely know. Ordinarily I'm pretty good at putting up with religious folk; I know that religion is important to the rest of my family, so I try not to complain too much. One person in particular, who shall remain nameless, I've known for several years, from back when I tried to go to my brothers' church to try to understand their perspective better. Tonight she sent me a message on Facebook about something called "Gerson Therapy", an alternative to modern medicine in the fight against cancer. That pushed me over the edge, and I deleted all of these people who only I barely know and who obviously don't know me at all.
It's one thing to believe in God. I understand that. The existence of God can't be proven or disproven, and I can see how the thought of a better life after this one would be comforting to many people. On the other hand, I consider logic to be irrefutable, and I think the only way that you can truly believe in anything resembling the Christian God is to just totally throw all notion of logic out the window; you must be willing to accept contradictions if you believe in such a God. That is the root of the problem, and that is what really bothers me. When you reject logic, you're free to reject sound scientific reason, such as the theory of evolution or in this unnamed person's case, modern medicine.
I know that right about now, I am incredibly thankful for modern medicine, and am ecstatic that people devote their lives to developing new and better drugs. If I had met Carmichael ten years ago, I would probably be dead by now, because Gleevec is such a new discovery. When you think of things that way, the speed with which scientific discoveries are made is literally a life and death issue for some people. This person's rejection of science is the ultimate insult to me.
That being said, I can tolerate most religious people, but they do tend to annoy me. I can't tell you how many people told me that they were praying for me while I was in the hospital, but I can assure you that I found the number to be far too high. Prayer is absolutely meaningless to me, and these people know that I'm an atheist, so why do they say such things? I know it makes them feel better, but shouldn't I be the one that they comfort? Oh well. I guess I can handle the aggravation if it helps them feel better.
The biggest issue here was that I knew my family would want me to reconsider my beliefs in my new situation. Oddly enough, I expected it more from my brothers and sister-in-law, but they haven't said anything. It was my Mom and Dad who each tried to persuade me, independently. My Mom tried to apply Pascal's Wager; believing in God had to be better than not believing in God. After trying very hard to convince her of the flaws in that argument --- 1) that you could apply the same argument for other gods, 2) that ascribing infinite value to an afterlife and finite value to our earthly existence is an incorrect valuation for many people, and 3) that believing in God in such a selfish way is unlikely to work even in the event that everything people believe of heaven is real --- she was eventually satisfied when I finally convinced her that the notion of death being final and absolute was actually comforting to me because it makes sense. Apparently, she was more concerned that I was depressed than she was for my soul.
I think it's difficult for religious people to grasp that atheists aren't really afraid of death, and I'm not sure why. It's not like we believe that there's the possibility for an eternity of torture after we die. Death is inevitable; it's really just a matter of when it comes for you and what legacy you can leave behind.
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Sunday, September 27, 2009
Screwed up my sleep cycle
So I did something stupid last night. I decided that now would be a good time to upgrade from Ubuntu 8.04 to 9.04. As a result, I stayed up until 2 AM, and it still wasn't done.
Then the upgrade process was interrupted by a family gathering. It was nice to see the Baden side of my family, since I don't get to see them often and I hadn't seen most of them since I started hanging out with Carmichael. After our lunch together, I went back to my brother Billy's house and spent some time with my niece, Betsy, and nephew, Drew. We all (even the kids) ended up taking naps for whatever reason.
Fast forward to tonight. It's now 3 AM. I had a perfectly working version of Ubuntu 9.04 in time to watch Saturday Night Live, but I wasn't content... I wanted to clean my system up a bit. I ran baobab and noticed some file duplications. What I failed to notice was that during my upgrade today, I tried to install boxee, which involved a hack to run the 32-bit version, which created some hard linked directories... Long story short, I practically did rm -rf / (FOR THE LOVE OF GOD DON'T TRY THAT AT HOME), effectively ruining both all of the progress I had made and bricking my system. And people complain when GMail is down for an hour.
Fortunately, I didn't have anything too important on there... I'm mostly living in the cloud these days, after all. I don't know what I'd do with out Google. Cry, probably.
I'm thinking I'll just not go to bed tonight and instead take a nap in the afternoon. That should reset my sleep cycle, right? Ted gets back tomorrow evening, and he'll get to see my brand new side effect: fluid retention! It's pretty gross. My legs feel like plump hams right about now, and I have really weird things going on around the edges of my clothes. Still, here's to another day. :)
Then the upgrade process was interrupted by a family gathering. It was nice to see the Baden side of my family, since I don't get to see them often and I hadn't seen most of them since I started hanging out with Carmichael. After our lunch together, I went back to my brother Billy's house and spent some time with my niece, Betsy, and nephew, Drew. We all (even the kids) ended up taking naps for whatever reason.
Fast forward to tonight. It's now 3 AM. I had a perfectly working version of Ubuntu 9.04 in time to watch Saturday Night Live, but I wasn't content... I wanted to clean my system up a bit. I ran baobab and noticed some file duplications. What I failed to notice was that during my upgrade today, I tried to install boxee, which involved a hack to run the 32-bit version, which created some hard linked directories... Long story short, I practically did rm -rf / (FOR THE LOVE OF GOD DON'T TRY THAT AT HOME), effectively ruining both all of the progress I had made and bricking my system. And people complain when GMail is down for an hour.
Fortunately, I didn't have anything too important on there... I'm mostly living in the cloud these days, after all. I don't know what I'd do with out Google. Cry, probably.
I'm thinking I'll just not go to bed tonight and instead take a nap in the afternoon. That should reset my sleep cycle, right? Ted gets back tomorrow evening, and he'll get to see my brand new side effect: fluid retention! It's pretty gross. My legs feel like plump hams right about now, and I have really weird things going on around the edges of my clothes. Still, here's to another day. :)
Labels:
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